Start with patient priorities
Help researchers understand which challenges, questions, and uncertainties deserve greater attention.
Patient partnership Canada-wide
Your experience can shape uveal melanoma research
The Uveal Melanoma Patient Advisory Committee brings patients and researchers together to focus research on what matters most to people affected by uveal melanoma.
We are inviting people in Canada who have been diagnosed with uveal melanoma to join the committee. By sharing your perspective, you can help identify important questions, guide research priorities, and turn those priorities into practical research goals.
Why it matters
Better research starts by listening
Researchers do not always see the full experience of living with uveal melanoma. Patients can identify unanswered questions, overlooked concerns, and outcomes that matter in everyday life. The committee creates a direct way for those insights to guide our work.
Shape meaningful research
Bring your perspective to research questions, plans, and outcomes so studies reflect patients' real needs.
Make findings more useful
Help us think about how research is communicated and how results can better serve patients and families.
How it works
Your perspective, throughout the process
The committee is a partnership. Researchers bring their methods and subject knowledge; patients bring lived experience. Together, we can set clearer priorities and develop research that is more relevant to the people it is meant to help.
Share what matters
Tell us about the questions, concerns, and gaps you believe research should address.
Help set priorities
Work with other patients and researchers to identify areas where research could make a meaningful difference.
Guide the research
Help translate shared priorities into research objectives and provide a patient perspective as the work develops.
Who can join
Lived experience is the qualification
We welcome people living in Canada who have been diagnosed with uveal melanoma, whether your diagnosis was recent or many years ago. You do not need a background in science, medicine, or research to take part.
A place for different perspectives
Every experience of uveal melanoma is different. Bringing together people with a range of experiences can help us see what research needs to consider—and what it might otherwise miss.
Get involved
Interested in joining us
Complete the short interest form and a member of our team will contact you with more information. You can ask questions and learn more before deciding whether the committee is right for you.
Uveal Melanoma Patient Advisory Committee
Share your interest
The form opens in Microsoft Forms.
Fill out the interest form