Instrument PROM-UM

Patient-Reported Outcome Measure for Uveal Melanoma

A purpose-built outcome measure for post-brachytherapy uveal melanoma care.

PROM-UM captures patient experience after ocular brachytherapy in a format designed for research, quality improvement, and clinical implementation. Its development and validation are supported by peer-reviewed ocular oncology publications.

About

Learn about PROM-UM

PROM-UM was developed to make patient-reported outcomes more specific to ocular oncology care, especially the symptoms, function, and lived experience that matter after treatment.

Focused on ocular oncology

General quality-of-life measures can miss treatment-specific concerns. PROM-UM is tailored to uveal melanoma care after brachytherapy.

Built for implementation

The instrument is intended for use in studies, registries, and care pathways where structured patient input can inform outcomes work.

Registration-supported use

Registration helps us understand how PROM-UM is being used, support appropriate implementation, and maintain version control.

Evidence

Development and validation

PROM-UM is supported by peer-reviewed work describing its development and psychometric validation for patients treated for uveal melanoma.

Development paper

Development of the PROM-UM instrument

Foundational publication supporting PROM-UM development for patient-reported outcomes in uveal melanoma care.

View article

Validation paper

Psychometric Results of a New Patient-Reported Outcome Measure for Uveal Melanoma Post-Brachytherapy Treatment: The PROM-UM

Validation study published in Cancers reporting PROM-UM psychometric results after plaque radiation treatment.

View article

Licensing

Choose the license that matches your use

A PROM-UM license is required before using, reproducing, distributing, translating, adapting, or electronically implementing the instrument.

Academic / non-profit

No fee

For investigator-led academic research, student projects, and non-profit quality improvement where PROM-UM is not part of a commercial product or sponsored trial.

Register academic use

Commercial / trial use

$35-$70 USD per use

For industry-sponsored trials, contract research, digital health products, electronic platforms, or other commercial implementations.

Request an estimate

Estimate

Approximate your fee

Use this guide for planning. All prices are listed in USD. Final fees and permitted uses are confirmed during registration.

Use type Typical examples Indicative fee
Academic / non-profit Unfunded or grant-funded academic studies, theses, non-profit QI No fee
Clinical Clinic groups, hospital programs, registry-based care monitoring $500/year USD per group of 20 users
Commercial / clinical trial Sponsored studies, CRO use, licensed electronic capture, product integration $35-$70 USD per completed use

Register

Register to use PROM-UM

Send a short registration request and we will confirm the appropriate license, fee category, and next steps.

Include these details

  • Your name, institution, and contact email
  • Intended use: academic, clinical, commercial, or trial
  • Study, clinic, registry, or platform name
  • Expected number of participants, sites, or users
  • Whether electronic implementation or translation is planned

Contact

Trafford Crump, PhD

Ocular Oncology Outcomes Research

Email registration request